Do what you can...

There are some days where Alex just can not tolerate being up in his wheelchair. It is too complicated to explain or figure out so what we do is just what we can. He and I figured out how to set up his computer and mouthmouse(Quadjoy)for him to use while staying in bed. It works and then Alex feels like he is doing something other than watching T.V.. He is a teenager and he can get so bored! It can be so difficult to watch him have to sit or lie for many hours when others his age are running around. It is a tough journey in so many ways but one we are doing the best that we can to navigate.