Some People Live in the Notes
Some People Live in the Notes Standardized systems need structured information. Checkboxes, scores, task lists, categories, and measurable fields make it possible to organize care across large systems. But some people cannot be safely understood through structured fields alone. My son Alex is one of them. A form can accurately say: total assistance ventilator support quadriplegia abnormal blood pressure respiratory equipment dependent for activities of daily living All of that can be true. And still miss the most important part. Because Alex often lives in the notes . The notes tell you what happens when he sits upright. They tell you that heart rate and blood pressure may fall together. They tell you that pain can trigger a very different physiologic response than someone might expect. They tell you that a diaphragm pacer and ventilator are not interchangeable supports. They tell you that an intervention that would be routine for another patient may affect h...