#LivingNotJustExisting
Cruising down the driveway. Enjoying the sun at the local lake. Crossing the finish line together at a 5k! Hanging out at the lake with a friend who happens to be an elder from church. Alex pulling Aaron…brothers having fun. There is a difference between funding what keeps someone alive and funding what allows someone to live. For people with significant disabilities and complex medical needs, that difference can be enormous. My son Alex uses a diaphragm pacer as his primary respiratory support, with a ventilator providing additional support. His respiratory system also requires continuous humidification. Even though the diaphragm pacer is Alex’s primary life support, the supplies necessary to operate it are not co...
