Excerpt from an email I sent…
As family providers continued to be scrutinized and analyzed, understand that for decades since home and community services began, often it’s been a family member (often unpaid) who has been the glue that’s held things together and kept their loved one stable, well, and to live not just exist! An excerpt from an email I sent… ### Emergency planning and remaining at home Alex has repeatedly been discussed in terms of facility placement if I become temporarily or suddenly unavailable. I need to be clear that Alex’s emergency plan is to remain in his home, with appropriate support brought to him. His home environment is not incidental to his stability. It contains the equipment, respiratory setup, established routines and knowledgeable support that have helped maintain his stability for more than two decades. His daily standing, exercise, stretching, positioning, movement, airway management, personal care, interaction with others and established routines are not simply amenities. They are...
